Fundraising in Action

 
 
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Jack Straw Golf Tournament

In its fourth year, a robust group of golfers stormed one of San Francisco’s best courses for a day full of golfing and fundraising. This event raised awareness and money for the cause. A big thank you to Dean Nacey, the tournaments founder, for showing your dedication to the cause.


Hypopara Assocation Conference, october 2018

Jamie and Amanda attended the conference in Chicago. We attended the conference to learn more about this disease, connect with community members and also annouce our foundation and challange the group to a fundraising goal - which was met THAT NIGHT!

Very little known is practically known by most doctors and even endocrinologists. Often time, patients have to be their own advocates to know which tests needs to be ordered and what ranges are ‘okay’ for the common patient, but problematic for a patient with chronic hypopara. We spent two days listening to different presenters hearing about :

  • Bone Health and Hypoparathyroidism

  • Caregiver Topics

  • Current Treatment options for Hypoparathyroidism

  • Dental Issues

  • Elective Surgery for Hypoara Patients

  • How will Hypopara Patients be treated in the future

  • Disability Law

  • Lab tests and Interpretation of Results

  • Targets and Goals for Management of Hypoparathyroidism

  • Tips and Tricks of Making the Most of Doctor Appointments

  • What about other Medications?

    There were top Doctors in the field to present and also converse with patients.

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A poster made for the event! Barrypalooza 2018

A poster made for the event! Barrypalooza 2018

BarryPalooza Music Festival, AUgust 2018

We hosted a day and evening of music including the musical likes of Cryptical with Stu Allen, Tad Moore, Strangers in the Backseat and James Greene IV. Along with soliciting donations, Amanda and Jamie’s children sold lemonade. All proceeds going to the Hypopara.